Today marks three years of marriage for me, and since this blog’s niche seems to be mostly about the passage of time and marking milestones, I can’t afford not to reflect on where we’ve been and where we’re going.
First of all, I know that three years sounds like a fairly insignificant amount of time about which to wax poetic, but it certainly feels a lot more monumental to me. I think that’s because each year of my marriage has been defined by a huge life experience.
Year 1: Cancer!
Year 2: Pregnancy!
Year 3: Baby!
I sometimes think about how we might have reacted if at our wedding reception we had magically been shown a movie trailer providing a tantalizing glimpse of what the next three years would hold. Would we have run screaming out of the ballroom? Would we have been a little more reflective whilst doing The Wobble on the dance floor? Would we have wondered where the Candid Camera was hidden?
Regardless of our imagined reactions to a hypothetical scenario, we still would have been forced to do exactly what we did—live through it all and rely on each other every day.
Marriage is not a movie trailer. It is not defined by the big moments and the dramatic reveals. A more realistic trailer would show how mundane married life really is, even when you’re dealing with an admittedly outsized number of intense life events over a short period of time.
The true-to-life trailer would have Oscar-worthy scenes of me texting Theresa about what time the train will get me home from work and Theresa replying to ask about my dinner preferences. It would feature suspenseful scenes of Theresa finding out that we somehow owe money on our income taxes and me desperately trying to finish mowing the last few rows of my lawn before the bag fills up. Will he make it?!
My point is that marriage—even a quote-un-quote exciting marriage like mine—is far less action-packed than it seems like it will be. It’s mostly about just going through your daily life, but with the added complexity of going through it with a partner.
That complexity is the key to the whole thing. If you’ve found the kind of partner with whom you would happily watch paint dry, the day-to-day “drudgery” can be pretty darn fun. Big stuff like getting through cancer, going through pregnancy and raising a baby will be similarly enjoyable (OK, maybe some more enjoyable than others) because you have entered into a partnership that enhances your life and makes the mundane moments manageable and the important moments magical.
I’m filing jointly now—in taxes and everything else.
But marriage is a process, not a proclamation, and there’s no guarantee that we’re always making things manageable or magical for each other. These three years have taught me two main lessons about how to be the loving, selfless husband that I want to be: how far I’ve come from who I was when I was single and how far I still have to go.
Sometimes it’s the day-to-day disagreements that stack up to the point where you’re tripping over each other as you try to walk around them. Other times it’s a seemingly fundamental fight that in the moment makes you wonder how you’ll ever come back together on the issue.
Thankfully, the balms of heartfelt apology, authentic forgiveness and eventual laughter have soothed wounds both big and small. We agree that the partnership is the best thing we have going—and that our partner’s influence is helping us to become the people we are meant to be.
As parenthood became the focus in Year 3, the centrality of our partnership became more complex and crucial than it had been during disease or pregnancy. We brought a new life into the world together—and introduced a host of new joys, sorrows, worries and wonders with which to grapple. With a third member added to our party, we found more magical moments to enjoy together and more opportunities for the marital rubber to hit the road. Our beautiful daughter required us to individually push ourselves to our limits of time, energy, and enthusiasm, while also requiring us to support each other and protect our partnership more than ever.
Even with our diverse experiences in the first two years of marriage, it was still hard. It remains hard. But as Tom Hanks said in A League of Their Own, it’s supposed to be hard. The hard is what makes it great. And the last three years of my life have been a whole lot better than great.
I try not to let a day pass without being grateful that Theresa and I found each other and for the innumerable blessings that have flowed into my life by hitching my wagon to her star. To have lived through and learned so much by her side in just three short years of marriage makes me wonder what mundane and momentous experiences await when three years becomes 30 and 30 becomes 50. Is there a movie trailer for that?
I don’t know how or why it happened. If I had reflected on it more deeply back then, I probably would have thought that I was starting to develop my mutant power like the X-Men I was so thoroughly obsessed with at that point.
But this mutant power only lasted a year, and it was very specific in its application. At my suburban Catholic school, there was a circular driveway around the grassy field behind the school. On days when it was seasonable enough for gym classes to be held outside, this driveway doubled as a running track, complete with speed bumps.
While the school has long since shuttered, the driveway remains intact, instantly transporting me back to the dreaded two laps that we were forced to run at the beginning of each class. Or worse yet, I’m reminded of the seven laps around the track that constituted the annual Running of The Mile. You always knew that The Mile awaited you eventually, and from the ages of about 8 through 18, it was one of the worst days of the school year for me.
But not in fifth grade.
When we would complete those two laps to kick off class, there I was near the front of the pack—waiting for the majority of my classmates to finish while I stood around victoriously regaining my wind and trying my best not to look cocky. “Yes, I used to be like you slow-pokes. Don’t worry, your day will come. My day just came quicker than yours. Because I’m so fast.”
When it came time to run The Mile, my latent mutant power kicked in again. I don’t remember my time—probably under eight minutes?—but I do remember being congratulated heartily by the other fast kids. I was standing with the athletic titans of my class: the girls who ran on the track team, the guy who was good at every sport he ever tried, and the incredibly short kid who parlayed his speed into a major source of social capital.
The point of this recollection is to assert that fifth grade was one of the only times in my life that I can remember not actively despising the act of running. Unfortunately, sixth grade rolled around and my mutant power regressed back to its customary place of being awkward around girls, and my love for running dissipated as quickly as my odds of snagging a partner at a school dance.
I’m happy to report, however, that almost 25 years later, I have once again made peace with running and have frequently paid money to run. I’m also married to a beautiful woman who loves to dance with me, which goes to show that nice mutants don’t always finish last…in love or races.
But this is about running and how I learned to un-hate it.
Somewhere around 2010, I realized that my slowing metabolism and life as an office-dwelling desk jockey were catching up to my waistline as well as my longterm cardiovascular health. While I don’t remember exactly what led me to choose my old foe of running as a plausible weapon in my battle against the bulge, it probably stemmed from the fact that I had read one too many of those “sitting all day is slowly killing you” articles. It also helped that I had coworkers and a brother who were also interested in running, which leads me to my first tip for learning to be OK with running:
1. Choose a running mate.
When it comes to exercise, I think it’s important to have a wingman. It’s not all that necessary that they even run alongside you—maybe they’re faster than you, or slower than you or just have a different schedule from you and can’t meet up to run. It doesn’t matter. The point is to find a training buddy who will listen to your sob stories about how hard your run was yesterday and how sore you are today, who will celebrate with you when you break a personal record, and who will inspire you to keep pushing yourself in those moments when you realize that you are now spending your free time willingly doing that thing you hated for so long. It’s also way more fun to sign up for a race with someone else, rather than just doing it by yourself. It gives you a common goal to strive for and someone to eat bananas with after you cross the finish line.
Once I had found my running mates, it was time to actually go for a run. I still remember the first time I went to the gym after work and ran a mile THAT I WAS CHOOSING TO RUN. It was exhausting, but also invigorating in a weird way. When I was eventually able to run an entire mile without stopping, it became less exhausting and even more invigorating.
2. Sign up for a race.
Just because I’m OK with running, doesn’t mean that I love it. There are still plenty of times when I don’t feel like doing it, which makes me all the more proud of myself when I actually follow through. I’ve always been better about motivating myself to run when there is a date on my calendar when I know I’m going to run an organized 5K. My interest in and stamina for running has not led me to anything beyond a 5K in the last 5 years—and I’m not sure that I’ll ever tackle anything greater than that—but it’s been important for me to use races as a reason to run.
It’s also just really fun participating in a race. Beyond the varying quality of the race swag (I highly recommend the Hot Chocolate 5K in Chicago!), there is a palpable energy at a race that calls you to be the best runner you can be and usually provokes me to run faster and last longer than I would when I’m running on my treadmill or around my neighborhood. It’s almost like you can feed off of the energy of the other runners to replenish your own reserves. It also helps that the race results will be posted online for eternity along with your full name and age at the time of the race, just a Google search away from being discovered by personal stalkers, blind dates or future employers. With those stakes, you want to put your fastest foot forward.
3. Track your progress.
Even before the days when I wore a FitBit that is perpetually telling me to get up and take some steps and smartly tracking my moments of exercise throughout the week (apparently my FitBit thinks mowing the lawn is a brisk bike ride), it was important for me to track my personal progress as a runner. Since the act of running is still not particularly diverting for me, the reward is the process of noticing improvement over time. How quickly can I run a mile? Can I run a full 5K without stopping to walk? Can I run a 5K in under 30 minutes? I always have a goal of some sort in mind, and completing one goal makes me want to tackle the next. It took years of on-again/off-again training, but I recently ran my first 5K without stopping, so now I’ll be moving on to improving my time. It’s also nice to have a device that will tell me exactly how far I’ve run and show me my mile time splits.
4. Make the conditions as perfect as possible.
Running is an investment of time as well as calories, so it’s important to make that time well spent, or you’ll never learn to tolerate it. Once I decided that running was something I wanted to commit to, I tried to make the conditions as conducive to running as possible. On a basic level, that meant buying some dry-fit clothes to combat my profuse sweating and getting new shoes to be used exclusively for running. (I actually started out using my old shoes and eventually hurt my knee, probably because the shoes weren’t giving me the cushioned support that I needed.) I also downloaded an app that could track my runs and eventually bought a FitBit. I like to listen to music or podcasts while I run, so I got an armband to hold my phone. When I was starting to see some progress and increasing my distance beyond The Mile, I paid some hard-earned money to sign up for my first race. (Again, find one with good swag so that it feels like you’re buying something beyond a runner’s high.) Most recently, I bought a treadmill so that I could continue to run over the winter without having to pay for a gym membership or deal with the hassle of driving to and from the gym to go for a run. To my immense surprise, I actually used it quite a bit and was able to maintain some of my running momentum even through the harsh Chicago winter. When spring rolled around, I wasn’t starting at zero, which was a great feeling.
5. Don’t stop believing.
As I’ve hopefully made clear, I still don’t love running. I have yet to have a full epiphany on the joy of spending a half hour banging my legs into the ground as I travel short distances that humankind has invented better methods for traversing. (My bike stares back at me with disgust every time I go for a run.) I also encountered injury (that shoe-induced sore knee) that prevented me from running for a time and derailed the progress I had made. That wasn’t fun, and my break from running extended well beyond the healing of my injury, as I kept coming up with reasons why I couldn’t get back into it just yet. But the seed had been planted, and eventually a spring day came that made me say “This is running weather,” and I started pounding the pavement again.
It sounds cliche, but running is almost as much of a mental challenge as a physical one for me. Since it’s not my passion, there are mental hurdles I sometimes have to jump to maintain my motivation, but once I do, I never regret the run. I definitely like running more after I finish than before I start. And for now, chasing that feeling is enough to make it worthwhile.
If you’re like me and you’ve hated running for a long time, I’d encourage you to give it another try. If I could go back in time and tell my childhood self that I would grow up and frequently run of my own volition, he would never believe me, but that thought also inspires some pride that makes me glad I’m doing it.
And, who knows: If I keep this up, maybe I’ll magically become fast again someday.
This thought always seems to not-so-coincidentally occur to me around the time of my once-every-four-months oncologist checkups. How sad that it takes the specter of cancer to make me once again realize how truly blessed I am.
The timing of this week’s appointment was particularly compelling, as Lumpy was already back on my mind for a variety of reasons.
First of all, I had just read the story of Amy Krouse Rosenthal, a Chicago area writer who knew she was dying of ovarian cancer and penned a touching love letter to her soon-to-be-widowed husband for Valentine’s Day in the form of an online dating profile for any woman who would be lucky enough to be with him after she had passed. She was diagnosed in September 2015 and died this week at the age of 51. As always, epically sad stories like this one leave me reeling with grateful thoughts about the fact that my Lumpy was the beatable kind. By simply adding “non-” to the beginning of my Hodgkin’s diagnosis, it could have easily gone another way. Why was I chosen to live?
Secondly, I received an email last week from a new health site called Bright Bod that is seeking to interview patients of various cancers and post their answers to experiential questions online as a somewhat crowd-sourced version of Web MD. Always eager to share my cancer experience in any way that would be helpful to Lumpy’s future victims, I jumped at the chance and walked through my cancer fight via a 45-minute Skype interview. (Incidentally, if there are any other cancer patients reading this, I can send you the site’s contact info if you would like to participate…they will pay you for your time!) Going over the timeline and symptoms and side effects of treatment, I realized how infrequently I think about it on a daily basis. Being a cancer survivor will always be a big part of my identity, but my full return to good health more often than not makes it a footnote instead of a headline. What a blessing.
Thirdly, a few weeks ago a friend texted me asking for prayers for a couple who found out they were pregnant…and then found out the mother has Hodgkin’s. I have written many blog posts here and elsewhere chronicling the joys and sorrows of both cancer and pregnancy—but going through both of those medical events simultaneously is simply unfathomable to me. Please stop reading this for a moment and offer a prayer for that couple and their baby. They must be a very special husband and wife to be given such a tremendous trial.
The final reminder that my gratitudinal attitude could use some adjusting came from looking back at one of my own cancer posts. Since Facebook now delivers a daily “This Is Your Life” digest of what I was doing on this day in previous years, I am able to relive the 2015 Lumpy battle as it recedes into the social media version of the history of my life. I wrote this post almost exactly two years ago, as I struggled with neutropenic fever and an unwillingness to endure more chemo treatments that I knew would make me feel even worse. I was reading the comments on the post and saw one from a woman whose blog site was titled “Livingly Dying.” I clicked over to the site and saw that she had indeed passed away on June 10, 2015—less than three months after commenting on my blog. Recent posts were dedicated to memorial services and a charitable event in her honor. The blog lives on as a testament to her more than four-year fight against ovarian cancer. Once again, it becomes impossible not to be extraordinarily grateful for my current situation and rather ashamed of my frequent lack of gratitude.
Now you might say, “Matt, don’t be so hard on yourself.” But why shouldn’t I start every day with a prayer of gratitude that I am still alive? My ability to write this post right now is a product of early detection, modern medicine and the support and prayers of everyone in my life. I am no more worthy of getting to live my life, love my wife and raise my children than any of the countless people who have succumbed to terminal versions of the disease. And neither are you, my cancer-free friend.
But it’s so hard to remember all of this during the day-to-day frustrations of daily life that nevertheless are still moments of a life that we are blessed to continue living! We should live in full and constant thanksgiving for all the awesomeness in our lives, and seek out joy even in the beautifully mundane moments. I’m striving to shed the skin of entitled indifference that starts building up every time I get another all-clear from my doctor. I got that call today. I’m four healthy months closer to total remission and a declaration of “cured.”
But I know the real cure is unmitigated gratitude, and I need to increase my dosage.
As I type this tonight–about two months from my one-year No Evidence of Disease remission anniversary–I find the thought almost comical: Why would I switch oncologists now? After all, I’ve already endured 12 rounds of chemo on my current doctor’s watch, put up with his idiosyncratic bedside manner, his maddening lack of clarity and availability, some mistakes in treatment and his Groundhog Day-like inability to remember the details of my case between visits.
After reading that last sentence, perhaps you’re wondering why I stuck with him in the first place. Well, the answer is largely because the hospital was conveniently located minutes from my house and my oncologist was supposed to be administering chemotherapy according to the marching orders of a highly respected lymphoma doctor at the University of Chicago who provided my second opinion and course of treatment. That doctor assured me that chemotherapy is chemotherapy no matter where you get it, and it seemed a lot smarter to get it five minutes from my house than to brave rush hour traffic to-and-from Hyde Park once a week for chemo sessions or checkups.
But I’m assuming that while the ABVD chemotherapy poisons are the same everywhere, the level of care from your oncologist can differ greatly from practice to practice. And in that department, my oncologist could surely use some…practice.
So what was the straw that broke the camel’s back? It happened earlier today. My wife and I had recently been chatting about how I am due for another PET or CT scan, as my oncologist had said he wanted me to get one every three months for the first year. For each of these scans, we have had to call his office to see if he still wanted me to get one and had to connect with him in order to get the scan ordered. (Is this normal? Or is the office supposed to call you to schedule your scans? I have no frame of reference for this beyond my dentist and my eye doctor, who always call or send a postcard when I’m due for some maintenance. Fellow cancer patients and caregivers: what has been your experience?)
Completing these scans is always a stressful experience for me–both because I hate getting stuck with needles and also because I always have a fear in the back of my mind that the scan won’t be clear and I’ll need more chemo or radiation or some other form of cancer-fighting torture. At the appointments to get the results of my three-month and six-month scans, it was clear that my oncologist had not even looked at the results before entering the room, which left my wife and I quivering in fear as he read them over in our presence. After the first scan, there was some ambiguity in my throat that required me to go back to the ENT who originally diagnosed my cancer. But my doc hadn’t seen this before I was in the room, so we got to watch him process it and ask me questions about my general health before he told us what was going on. It was terrible.
After my six-month scan, he reacted incredibly positively to the completely clear scan as he read it for the first time in front of us…because he thought this was my first scan after remission. When I complained about having to drink a disgusting contrast liquid before the scan, he told me that they didn’t need an abdominal scan because my lymphoma was in my neck, so I wouldn’t have to do that for any future scans. That’s nice, but we still got charged for the unnecessary abdominal scan that was clearly ordered because he wasn’t paying enough attention and didn’t bother to examine the details of my case.
But the back-breaking straw came today, when my wife once again called his office to find out if he still wanted me to get a nine-month scan and to get it scheduled. The office left a voicemail saying that we were supposed to have come back for a checkup after two months (which was never suggested to us on our last visit and had not previously been the protocol) and that my doc wanted me to get a scan of my chest, abdomen and pelvis.
Even casual readers of my cancer adventure will remember that my cancer presented as an enlarged lymph node in my neck. SO WHY IS HE NOW REQUESTING A SCAN OF EVERY LOCATION EXCEPT THE PLACE WHERE THE CANCER WAS?
I’m sorry. I’ll calm down. And turn off caps lock.
A quick scan of his waiting room tells me that he sees a lot of patients and that some of his patients probably have lymphoma. But I also know that I am probably one of the only ones who is under 35 and therefore perhaps a little more memorable than a lot of the older cancer patients he sees. But even if he couldn’t exactly remember the details of my case, shouldn’t he look at my chart a bit more carefully before ordering incredibly expensive scans that are meant to ensure that the cancer hasn’t returned?
So this is why I kind of want a new oncologist now. But I’m not sure that’s even an option for me. Do oncologists take on patients who are in remission and just come in for tuneup scans?
In the 17 months since Lumpy first entered my life, I have tried to be a resource for anyone who is dealing with similar health issues. I’ve tried to meticulously catalog my experiences in the hopes that it could bring comfort or knowledge or solidarity to others who find themselves fighting their own Lumpy.
But tonight I find myself somewhat frustrated and in need of advice. If you are reading this and have any experience with professional medicine or cancer treatment, I would love your feedback. Leave a comment or send me a message (roundingthirty at gmail dot com), and I would be very grateful for your insights.
Despite my frustration, I remain in good health–although perhaps gaining a bit too much pregnancy weight in solidarity with my pregnant wife–and richly blessed beyond measure. My oncologist and his staff did take good care of me throughout my treatment, but this latest development just feels like a logical breaking point, if it’s possible to switch to another doctor. Regardless of any of this, I feel so sure that all of the experiences that came from my cancer battle were oddly dressed blessings from God that fit perfectly into His plan and have prepared me for new and exciting challenges to come. Thank you for reading this and for all of your support!
Every year of your life is memorable and important in its own way, but when you’ve had a year like the 2015 that I just experienced, it’s pretty easy to see that this one stands out from the rest.
On December 31, 2014, I celebrated New Year’s Eve at my parents’ house with my three younger brothers and my wife of three months. We had just come home from a wonderful dinner at a steakhouse and finished baking our traditional batch of New Year’s Eve peanut butter cookies. My brothers and I had pulled out our old karaoke machine and were taking turns singing songs from the three karaoke CDs we own and then moved on to attempt a cappella covers of Rockapella songs. (Yes, they sang more than just the theme song to Where in the World is Carmen Sandiego? and back in the day, we had a cassette of all their “hits.”)
I look back on that evening with such fondness, as it was truly the calm before the storm. Three days later, I was punched in the gut with a cancer diagnosis that would come to define the year for me.As I heard the diagnosis and fought back tears, I never would have dreamt that in the final analysis of 2015, I could look back positively on the experience and on this year. The next seven months involved surgeries and tests and doctor appointments and working from home and hospital stays and chemo treatments.
But those months also included well wishes and prayers and cards and care packages and the unending support of hundreds of people. This turned the trials and tribulations of my cancer experience into an opportunity to grow in faith and love–and a chance to learn more about myself and what I’m capable of enduring when God, family and friends have all got my back.
The second half of 2015 featured a wonderful return to normalcy, but with a renewed sense of gratitude for the awesome life I have and the abundant opportunities and blessings that continue to pile up for me.
I saw Pope Francis up close in D.C., and Pope Francis saw my Flat Francis social media campaign.I crossed Billy Joel and Harry Connick, Jr. off of my concert bucket list. The Cubs made the playoffs and I got to be at Wrigley to watch them beat the Cardinals in the NLDS. I went to Disneyland with my family and went back to Newburgh to see my wife’s family several times. I beat cancer in time to celebrate a Lumpy-free, one-year wedding anniversary. What’s not to love?
2015 was also an epic year for this blog. In 2014 I wrote 3 posts and had about 4,000 views. This year I wrote 72 posts and had more than 25,000 views.
I can’t thank you enough for reading my posts and caring enough to follow along with my adventures and random musings. I’m a writer, and writing will always be a fun and therapeutic way for me to process my experiences, but it’s much more gratifying to know that people are reading or enjoying or learning or getting something out of what I write. Being able to share my cancer experience through this blog was great medicine for me. It meant that most people in my life didn’t need to get caught up on the details of my treatment when I saw them. And I have been incredibly flattered by the number of people well outside my circle of immediate friends and family who have taken the time to read this blog and reach out. THANK YOU!
Every year I make a New Year’s resolution, and unfortunately I usually can’t even remember what it was by the following New Year’s Eve. I hope this year is different.
I resolve to remember the main lesson that I learned from 2015 and to pay it forward: I want to be more mindful of all the challenges people in my life are facing and proactively reach out to them to see how I might help. I know now that a simple “How’s it going?” email can sometimes be exactly what someone needs to make it a better day. Telling someone that you will pray for them could be enough to give them a little more strength to persevere. The gift of time and attention should never be minimized.
Throughout 2015, people were going out of their way to make sure I was OK and feeling the love. I’m more than OK now, so I want to help everyone else feel the love.